Australian Pregnancy Register for Women on Antiepileptic Medication 
ABN: 38 128 668 797

Please call us - 1800 069 722


This a voluntary, nationwide study that is enrolling women who are currently pregnant or who have given birth recently (infants up to 6-9 months of age) in the following categories:

  • Women with epilepsy taking antiepileptic medication (AEDs).
  • Women with epilepsy not taking AEDs.
  • Women taking AEDs for allied conditions.

Background

From previous research it is believed that women who are taking an AED may have a slightly higher incidence (4-6%) of having babies with birth defects than the general population (2-3%).

After ten years of data collection and analysis, there is now some evidence available to determine whether this small increase is related directly to the drugs, the epilepsy itself, or other factors.

As a result from this study we are getting closer to defining safer treatment choices.

 

The aims of this project are:

  • To evaluate the incidence of adverse foetal outcomes resulting from pregnancies exposed to antiepileptic drugs (AEDs)
  • To determine if certain AEDs or combinations are associated with a higher incidence or specific types of adverse pregnancy outcomes.
  • To determine the influence of the seizures, the epilepsy type, the genetic background, and environmental factors.
  • To study the comparative efficacy of AEDs on seizure protection in pregnancy, assessed on the basis of self reporting and increased dose or additional drug requirements

DO NOT STOP MEDICATIONS WITHOUT FIRST CONSULTING YOUR DOCTOR AS THIS MAY RESULT IN UNCONTROLLED SEIZURES WITH POTENTIALLY SERIOUS CONSEQUENCES FOR BOTH THE MOTHER AND THE UNBORN BABY. 

 

Advisory Board

Director & Principal Investigator   Prof Frank Vajda
Principal Investigator   A/Prof Cecilie Lander
Co Investigator                Prof Terry O'Brien
Research Coordinators    Annie Roten & Janet Graham (janet.graham@mh.org.au)
Treasurer       Peter Davis
Executive Board Member  Amanda Wood
Advisory Board Members         Sam Berkovic, Andrew Black, Andrew Bleasel, John Dunne, Mervyn Eadie, Geoff Herkes, Dan McLaughlin, Jim Pelekanos, Ingrid Scheffer, Ernie Somerville & Liz Walker

 


Enrolment

 

Recent findings from data analysis up to October 2008

 

Antiepileptic Medications (AED's)

 

Supporters & Donations

 

For more information, click the link below for a list of further reading material by the Australian Epilepsy Register:

Journal Articles

 

 

Your participation will benefit women's and babies' health and may help you and your family in future pregnancies.