Australian Pregnancy Register for Women on Antiepileptic Medication
ABN: 38 128 668 797
Please call us - 1800 069 722
This a voluntary, nationwide study that is enrolling women who are currently pregnant or who have given birth recently (infants up to 6-9 months of age) in the following categories:
- Women with epilepsy taking antiepileptic medication (AEDs).
- Women with epilepsy not taking AEDs.
- Women taking AEDs for allied conditions.
From previous research it is believed that women who are taking an AED may have a slightly higher incidence (4-6%) of having babies with birth defects than the general population (2-3%).
After ten years of data collection and analysis, there is now some evidence available to determine whether this small increase is related directly to the drugs, the epilepsy itself, or other factors.
As a result from this study we are getting closer to defining safer treatment choices.
The aims of this project are:
- To evaluate the incidence of adverse foetal outcomes resulting from pregnancies exposed to antiepileptic drugs (AEDs)
- To determine if certain AEDs or combinations are associated with a higher incidence or specific types of adverse pregnancy outcomes.
- To determine the influence of the seizures, the epilepsy type, the genetic background, and environmental factors.
- To study the comparative efficacy of AEDs on seizure protection in pregnancy, assessed on the basis of self reporting and increased dose or additional drug requirements
DO NOT STOP MEDICATIONS WITHOUT FIRST CONSULTING YOUR DOCTOR AS THIS MAY RESULT IN UNCONTROLLED SEIZURES WITH POTENTIALLY SERIOUS CONSEQUENCES FOR BOTH THE MOTHER AND THE UNBORN BABY.
|Director & Principal Investigator
||Prof Frank Vajda
||A/Prof Cecilie Lander
||Prof Terry O'Brien
||Annie Roten & Janet Graham (firstname.lastname@example.org)
|Executive Board Member
|Advisory Board Members
||Sam Berkovic, Andrew Black, Andrew Bleasel, John Dunne, Mervyn Eadie, Geoff Herkes, Dan McLaughlin, Jim Pelekanos, Ingrid Scheffer, Ernie Somerville & Liz Walker
Recent findings from data analysis up to October 2008
Antiepileptic Medications (AED's)
Supporters & Donations
For more information, click the link below for a list of further reading material by the Australian Epilepsy Register:
Your participation will benefit women's and babies' health and may help you and your family in future pregnancies.